Sunday, October 31, 2010

Another twist and turn

The past month or so has been a blur. I’ve been working on finding another job after figuring out that things in my group are just not going to get better. I’ve done everything I can and still things have gone downhill. I’ve been sending out resumes and applying for jobs both in and out of state. I even got as far as to a second interview with a company in the northwest and after dropping everything to get up there with a 48 hour notice I got the call on Tuesday and was told thanks but we decided to hire someone else.

During all this Elliot turned 1 and we had her birthday party. Everything went well and we got a few good shots of her smashing a cupcake and loving every bit of it.

The biggest impact on things we have been facing is a challenge with Butters. I’ve been in denial about it for some time but we finally got him tested by a speech pathologist and were not prepared for the results. We knew he was speech delayed and that since Elliot was born but not the degree we were told.

The basic diagnosis so far has been a severe delay in receptive and expressive language skills. Basically the test said that he is around the same place as a 1.5 year old with language and he is 3.5. When I read this it was like someone just knocked the wind right out of me.

Also her recommendations on how to start correcting things were quite drastic. She said that we need to take all of the things he loves (his cars, numbers, hockey ect) away from him. She suggested that the only tv he get to watch is educational programming. Well this is not the path we decided to take. We are working within limits and doing everything we can to encorage him to use more words together. Something as simple as saying “juice please” is a big deal and we are getting him to say it more and more.

The funny thing is that in the past couple of weeks Butter's has started to learn the UAH Hockey roster. His favorite thing is to say “Starting at left defense, #2 Ryan Burkholder”!

So what do we do now is the question I’ve gotten from a few people. Right now we are working like crazy to get him into the early intervention program at the elementary school we are zoned for. This is becoming challenging though because they can’t evaluate him until January 5th. So in the mean time we are working like crazy to get another evaluation set up at the children’s hospital as well as social therapies started. The hospital has a therapy center for this kind of thing but first they have to evaluate him for speech and occupational delays.

Luckily since beginning this post I was put in contact with a speech pathologist that works primarily with preschool aged kids. The therapist I got to talk to on the phone was really wonderful. They just ask that I bring a copy of the initial test results and give it a shot. She recommended that we try a couple of sessions then if he doesn't take to her then maybe we could try someone else.

I’m also looking into starting him in a structured athletic activities. The Little Gym has a preschool program and we are going for a trial class Monday night to see how he has responded. I’ve also contacted several other gyms about their classes trying to find the best fit for him.

So this is the point we are at now. We are doing our best to get things started but it’s a very slow process.

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