Update!

So I noticed the other day that this thing had been quiet for about a month. Things have been busy around the house, but then again with 2 kids (about to be 3 when Mac comes to stay with us for a month) a dog and a cat how are things not busy.

We have been taking advantage of taking the kids to the Seattle Children's museum for their early open for autism. This is not only good for Alvin but also Elliot since its all about having fun in an environment made for kids.

Then there has been the time outside. When the sun is out we seem to stay outside doing things. We have even started doing picnic dinners at the park on a regular basis. They say that this is spring but I doubt its gotten above 65 deg and to me right now that doesn't feel much like spring!

The kids are still at The Little Gym. We have had issues for Alvin but that's another story for another day. The important thing is both kids are still loving it and doing well. Elliot even moved up to the next age group and Alvin transferred classes from the sports skills that was less organized to a pure gymnastics class with 4 to 5 year old kids that is much calmer and better organized.

The other reason I haven't been on here more is I have a new project. I found myself talking so much about Alvin and asperger's syndrome autism I created another blog just for that stuff. I'm working on about a post every week or 2 at this point. If you are inclined to check it out its called Life WithButters.

Happy 4th Birthday Butters and the IEP results!

Happy 4th Birthday Alvin!!

Since Alvin has become stressed by large groups we pondered what to do for his birthday. Since we are still settling in we decided on one of his favorite dinners (fried chicken) at home.

And then of course there was cake.

Toy Story is a favorite right now so we did that them. The cake was chocolate with banana filling from Safeway. As far as grocery store cakes go it was pretty good.

MMmmm! Cake!

Must grab frosting!!!

 Of course Elliot had to be involved in the fun too!

 Going back in for more frosting!

Earlier that day he also got his puppy back so it was a great birthday for him!

On another note we had the IEP meeting with his school on Thursday and I know one thing. They are not playing. They have some pretty good goals for him. Some of them include (and all of this is to be accomplished by mid June) to have a 30% increase in perceptive and receptive language, doing a task for 5 minutes or more, sitting in a group and listening to a story with other kids, playing well with others with minimal adult intervention and doing imaginary play with an adult or other child. Almost every goal says "with minimal or no assistance" which I love!

I met with his teacher, physical/ occupational therapist, speech therapist and psychologist. I fell in love with these women. They were wonderful to talk to and just kept saying how they wish I had brought him so they could meet him. They are very excited to work with him. 

He will be going from 9 to 11:30 Monday through Thursday and I felt very comfortable with the entire staff and can't wait for him to start on Monday. His class will have 10 kids, 1 teacher and 2 adult teaching assistants.  This is the best student to teacher ratio we could get. I feel like he is going to be challenged but also cared for as well. The staff told me they send home weekly letters so you know what they are working on and also said they communicate through email quite a bit and said if we ever had any questions for any member of his team we were welcome to email or call anyone of them. How great is this! I love the open communication that they are fostering already!

It is a little bitter sweet. He will start school on Monday and I'm not taking him. Will and Elliot. I know he will do well though.

A new normal

Alvin has autism.

There I said it. He has a form of it that most people we meet have no idea about. We are increasingly looked at when out and Alvin has one of his meltdowns in public. His brain is in overdrive and lately the outbursts and being scared has come far more frequent since the move.

But you know what. Alvin is normal to us. One of the things that W and I have strived for in all of this is not to loose sight of is to Always treat Alvin as normal as possible. To us he is still a normal 3 almost 4 year old. He throws tantrums, plays games, and even sometimes does things to his sister that we wish he wouldn't do. He also gets his share of time outs like any other preschooler.

But there are also times when we have to slow down. We have begun to take notice of the times that he needs more reassurance. Times when he just needs an extra minute or two to understand what s going on.

With the move, and diagnosis all within 4 months at times its been overwhelming. But somewhere in the middle of it all I think W and I stopped caring. Not really stopped caring but just stopped worrying about it all. Yes we have challenges that most families don't. Yes Alvin has increasingly more odd outbursts and unexplained (to most) meltdowns.

We got him enrolled in The Little Gym here the same week we got into town. I don't regret it for a minute. The gym helps with his social and motor skills. We have had great success there. Its fun for him without being too structured. He loves it and so do we and I think we will have continued success there with our “normal” little boy!

Playing hockey at The Little Gym

He was actually playing with her!!!!

2 weeks until we move to WA!!!

I know I've been really bad about posting anything else since I announced the move and its just because we have been insanely busy. Between the holiday's and the shear logistics of getting us ready to move across country it's been really busy. I also accidentally over scheduled Alvin on Tuesday's so we go from occupational therapy to dinner to The Little Gym and his sports skills class.

Alvin has been doing really well in therapy and the gym. Of course we have good days and bad days. His private therapist (Miss Denise as he calls her) has fallen in love with him and he will do almost anything for her. The best so far with his sports skills class that he actually listened part of the time and tried to play with the other kids. The worst of it is when he just runs all over the place and acts wild. I try not to intervene but sometimes I have to because he is just too wild. Its all a work in progress though and that's what I have to keep in mind.The Little Gym is not only teaching him motor skills but also how to interact with the other kids.

The logistics of the move are another job in itself. We have our flights, temporary housing and everything nailed down now. The wait for the background check to clear was the worst. It took over 3 weeks to finally clear. We've been slowly saying goodbye to family both here and in Moody. We know we won't be back for about a year so we are trying to make sure we see everyone before we leave.

The best thing that's happened so far is my new boss has already contacted me. We've talked a few times and he has even assigned me a mentor that I've been talking to quite a bit. Right now it looks like they have everything ready for me to start work there which is really awesome! My mentor has been very helpful thus far and after our conversations I am very excited to start.

I told my boss at work last week and he seems happy for me. The guys in my group say I'm lucky to be leaving. The guys in my group are not happy with how things have been going and many of them are looking for other jobs as well. At this point I'm just the first to leave.

To say we are excited is an understatement. Excited, scared, nervous yeah its all hit. The overwhelming thing is that we are just ready to get going.

Leaving Dixie, One of the Hardest thing to Leave, Charger Hockey

So many times here I have talked of our love of Charger Hockey. I started going to games in 1999 when I started school at UAH. When W and I met I got him to start going to games with me. Since we started going to games together we have probably only missed a handful of games. We took Alvin to his first game at 6 months and Elliot went to her first game at 2 weeks and only about a week out of the NICU.

So to say the least we are dedicated Charger Hockey fans!

When I started looking at getting a job out of state one of the things that we talked about really missing is Charger Hockey.

In the past 4 years or so the hockey community has become family of sorts. The Charger hockey family being the closest of those people. Once Danton Cole took over W and I started going to coaches luncheons with Alvin. He immediately was very personable and talked to us quite a bit. We got to know him and the rest of the coaching staff including the current head coach Chris Luongo. We have gotten to know them and they know us on a personal level. It is like extended family. We have even gotten close to a few of the guys on the team and their parents. Last year Alvin took a liking to Brandon Roshko at one of the skate with the Charger public skating sessions. We ended up getting his jersey at the end of the year and to see the smiles on both of their faces was priceless. Now we seem to talk the Bill Burkholder a good bit as well as incoming freshman goal tender's dad Joe Groh. The funny thing is over the years most people first ask me how the kids and W are before anything else! Even the team gets involved with the kids at skate with the Chargers.

We even know most of the security staff at the VBC. Many of them have watched Alvin and Elliot grow up over the past couple of years. We talk to these same people every single home series. Most try to interact more with the kids and really seem to like seeing us every week. They also are fine with us going down to watch warmups on ice level. They always know we will be returining to our seats and generally understand that I'm just doing it to give the kids an upclose and personal view of the action.

Then there is W. Don't let him fool you when he talks about it. He is very humble but some of the shots he gets are amazing. Any doubt just look at his flickr stream. Especially this shot. His attitude with players and coaches alike is one I've never seen before. He has a standing philosophy that anything he shoots that the guys or their families want just let him know and he will give them the full resolution copies or prints for free. Many of the guys that play here don't have family that can come to a lot of games so its important for him to try and help them share what they are doing with family back home. He has amazing dedication to what he does and the players and coaching staff alike.

Leaving this program and the atmosphere kills me.  We have come to love and respect the program so much and now we are leaving.W and I have talked many times about what it is going to feel like at our last game. Its going to really kill us in a way. No matter what the record and how they play its just what we do and no longer having that is going to be difficult. I'm just going to go ahead and say it. Our last game I'll be a wreck. The complete realization that it will be sometime before we make it back to a game is going to hit really hard.

This program has meant a lot to us over the years. The move we are making is for the best and I know once we get up there we will see more hockey and come to enjoy other teams. We will order B2 networks broadcasts of the games and even join the Blue Line Club but it just wont be the same.

No matter what happens we will never forget the UAH Charger Hockey team and what it has meant to us over the past few years.

The big news!

If you’ve been following this blog for about the past 6 months to a year you know I’ve posted many things about how unhappy I am at my current job. 2 different bosses and still things continue to go downhill. I’ve even recently been demoted within my group simply due to my age and inexperience with Catia V4.

Also I’ve made it no secret that I’ve been looking for a new job. After the last round of random layoffs in my office that search got put into high gear. I’ve thrown out resumes to places all over town with no luck. Then I started applying to jobs out of state. Specifically up in Washington where there seemed to be a lot of engineering openings. The first job that I was considered for I  got to the second round of interviews  but got rejected. This is about the point that W and I started getting down about things.

Then I applied to another job opening at the same company and got asked to attend a job fair in Seattle WA. So I made arrangements and went up there thinking that this was just the first step in a long interview process. After a delay at the hotel I got to my interview right on time and as soon as I sat down was told that I would be told that day if I got the job or not.

The interview went well but I felt like I struggled with a couple of questions. I felt good about it but my nerves were shot after the hour long interview. Then came the hard part; waiting to find out if I got the job or not. After about 45 minutes of waiting I was finally called back. I got the job!!! I was told the job offer would come within 3 weeks and then I would get my start date and the exact location of where I would be working. I immediately called W and shared the news. To say he was floored was a complete understatement. What we had been working so hard for was starting to pan out!

The official offer letter came on Monday to our amazement. The letter contained a few details and confirmed that I will be working in Everett WA. Since then we have been busy looking at places to live and talking too many of W’s old friends about the area. We have also told our immediate family. Some have taken it better than others which we expected but everyone knows we are doing this for us and nothing else.

Since getting the official offer its been a whirlwind of things going on. We've been looking at apartments and I've been doing all of the standard pre-employment things. We are contacting friends in the area that might be able to help us. I should be contacted by the relocation office once my background check is complete which we expect to be here soon.

So that's the big news. We are officially moving out west sometime in February!

To Butters after a long month

It’s come to me to write something to Butters. One day I'll be able to explain all of what is going on to him but for now it will reside here.


Dear Butters,

The past month has been really rough. We started out just thinking you were having a little problem speaking but it turns out things were much worse. Most nights when you go to bed it all hits me. How hard we have been working with you and how hard you are trying. Your dad and I struggle to understand you and make sure that we are not being too hard on you while still making sure that we push you to talk and act correctly.

I was one of the worst people though. I kept saying that you were just a normal 3 year old boy. You didn’t talk too much because in all honesty you didn’t need to. You are very much like your dad in that at times you are just quiet. You’ve always been outgoing in your own way and over time we have just learned that your interactions with people are just your own.

Over the last few weeks we have learned that you have been having seizures. There are drop or atonic seizures that only last for a few seconds. You never seem very phased by them and for so long we just thought you were clumsy like I am. The day of your occupational therapy evaluation when we found out about the seizures I just felt horrible. I of course beat myself up for not understanding that these things were not normal.

Over the next weeks and months there will be more tests. There will be changes in your routine that are going to throw you off of your norm. All I know is that even this process is going to be challenging it will get better. We will be going back to see hockey games once the team gets back in town. I promise you that. I also promise that once all this maddess of testing is over you will be able to start playing sports with other kids.

We will continue to let you see numbers and be completely amazed by your abilities. You learn in a very unique way and while it may be more difficult for you to understand things that other kids do so easily trust me it will come. Just trust me that your dad, sisters and I will do everything we can to make things easier for you to understand.

One thing I can tell you is that you surprise me every day. You are amazing in the unique way you see things. No matter what the end diagnosis is you are still you. At times you drive us mad with your unique ways and others completely surprise us with the things you have absorbed. At this time I know no other 3.5 year old that knows about half of the UAH hockey roster!

Just know that no madder what we love you and will be here through all of this.

Love,

Mom